When Sam met MEP Glenis Willmott at the Childhood Brain Tumour Centre in Nottingham, he, and other sufferers, told her that often no treatment existed for their illnesses or that they, as children, had no option but to use drugs intended for adult treatment of brain tumours.

For some children suffering from brain tumours, their only hope of survival might be to participate in a clinical trial, but sometimes there aren’t enough sufferers in one country to make this viable. Sam inspired Glenis Willmott to support new legislation across all EU member states that could increase survival rates for sufferers of rare cancers and diseases.

You can watch Glenis’ presentation to the parliament in Brussels here.